Privacy Tip #314 – Got a Genetic Testing Kit for Christmas? Read this Before you Send In That Swab

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I have written about genetic testing kits before, but this subject matter is worth repeating. I find that people don’t always understand the consequences when sending a swab to a genetic testing company.  Consumer Reports recently came out with a study led by its Digital Lab experts entitled “The Privacy Problems of Direct-to-Consumer Genetic Testing” which prompted me to revisit this as a Privacy Tip.

This is always a fun topic during Privacy Law class, and my students are often shocked when we discuss the laws that apply—or, don’t apply—to this highly sensitive information.

That said, whatever you decide to do with that genetic testing kit you got for Christmas is your own personal decision. Before you send it in, you may wish to read the genetic testing company’s privacy policy and the Consumer Reports Digital Lab experts’ report linked above. You may also wish to take into consideration your family members’ privacy, because when you submit your own genetic makeup to a private company, you are part of the genetic makeup of your whole family, so their information is part of that swab.

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DISCLAIMER: Because of the generality of this update, the information provided herein may not be applicable in all situations and should not be acted upon without specific legal advice based on particular situations.

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