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In this episode of OnAir: Health Care, Akin Gump senior policy advisor Matthew Hittle and consultant Dr. Mario Ramirez welcome Michael Hund of EB Research Partnership.
Among the topics:
- The severe challenges of the disease EB, or epidermolysis bullosa.
- The venture philanthropy model of funding research into rare diseases.
- Leading technologies in treating EB and other genetic diseases.
- Research fundraising via the federal government.