News & Analysis as of

Genetic Testing Direct to Consumer Sales Health Insurance Portability and Accountability Act (HIPAA)

Troutman Pepper Locke

Trends in State and Federal Regulation of Consumer Genetic Testing

Troutman Pepper Locke on

Direct-to-consumer (“DTC”) genetic testing companies are faced with more scrutiny than ever over their privacy practices, security practices, and data use policies. In December 2023, 23andMe experienced a data breach...more

Hogan Lovells

California and Florida contribute to web of state genetic privacy protections

Hogan Lovells on

States continue to enact laws targeting the protection of genetic data with two important developments in California and Florida. California’s Genetic Information Privacy Act (“GIPA”), which came into effect on January 1,...more

Sheppard Mullin Richter & Hampton LLP

New State Genetic Privacy Law Directed at Consumer Genetic Tests

Utah recently signed into law SB 227, creating the Genetic Information Privacy Act (GIPA). The law, which is anticipated to go into effect in May 2021, is aimed at protecting genetic data collected from direct-to-consumer...more

Sheppard Mullin Richter & Hampton LLP

California Governor Pulls the Plug on Genetic Information Privacy Act

Governor Gavin Newsom of California vetoed a bill that would have created new limitations on data sharing for direct-to-consumer genetic testing companies. The Genetic Information Privacy Act (GIPA) asked testing companies...more

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