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Data Collection Scientific Research

Sheppard Mullin Richter & Hampton LLP

Texas Joins States Limiting Use and Disclosure of Genetic Data

On June 17, 2023, Texas enacted legislation (the “Legislation”) limiting use of genetic data by certain genetic data testing companies, joining a number of other states in tackling the ever-increasing privacy concerns...more

Foley & Lardner LLP

All of Us Research Workbench Open for User Feedback

Foley & Lardner LLP on

The National Institutes of Health recently opened its data platform for user feedback of its “All of Us Researcher Workbench.”  Researchers are now able to use the initial datasets obtained from nearly 350,000 participants in...more

K&L Gates LLP

K&L Gates Triage: ONC Signals Federal Health IT Priorities with 2020-2025 Strategic Plan

K&L Gates LLP on

In this week’s episode, Ryan Severson discusses the Federal Health IT Strategic Plan, which was recently released by the Office of the National Coordinator for Health Information Technology (“ONC”). Mr. Severson discusses...more

White & Case LLP

Dashcams and autonomous vehicles: Dodging legal landmines in the EU

White & Case LLP on

White & Case Technology Newsflash - The development of autonomous vehicles has attracted significant attention in recent years. The technologies being used in order to enable vehicles to navigate without human assistance...more

Hogan Lovells

EDPB’s Position on Clinical Trials Creates Friction with Other EU Legislation

Hogan Lovells on

Clinical trials in the EU include the collection of sensitive health data from patients. Trial sponsors are obliged to reconcile their respect of regulations governing data protection with regulations governing the conduct of...more

Foley Hoag LLP - Security, Privacy and the...

EDPB Issues Opinion on the Interplay between the Clinical Trials Regulation and the GDPR

On January 23, 2019, the European Data Protection Board (“EDPB”) issued an interesting opinion about personal data processed in relation to clinical trials. The main role of the EDPB – which succeeded the Article 29...more

WilmerHale

The Legal Basis for Processing Personal Data in the Context of Clinical Trials in the EU: The European Data Protection Board...

WilmerHale on

On January 23, 2019, the European Data Protection Board (“EDPB”), which is composed of representatives of the national data protection authorities and the European Data Protection Supervisor, adopted an Advisory Opinion...more

Burns & Levinson LLP

The Importance of Context with Genetic Privacy

Burns & Levinson LLP on

As consumers, when we think of privacy, one of the first adjectives that springs to mind should be “inconsistent.” Consumers claim to want their personal information used only for the purposes they originally provided it, and...more

Hogan Lovells

New scientific data rules in China: China claims "data sovereignty"

Hogan Lovells on

In March of this year, the State Council released the Scientific Data Administrative Measures, a set of rules with the seemingly innocuous aim of collecting and making public the results of government-funded scientific...more

Dorsey & Whitney LLP

Does This Year’s Nobel Prize in Economics Suggest Any Lessons Regarding the Regulation of the Consumer Finance Industry?

Dorsey & Whitney LLP on

On Monday October 12, 2015, Professor Angus Deaton won the Nobel Memorial Prize in Economic Science. Professor Deaton’s work focuses in part on consumer behavior, and, more specifically, on techniques used by researchers for...more

Bergeson & Campbell, P.C.

Silver Nanotechnology Working Group Welcomes New Members

The Silver Nanotechnology Working Group (SNWG) was founded in 2009 as an industry-wide effort to advance the science and public understanding of the beneficial uses of silver nanoparticles in a wide-range of consumer and...more

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