Personal Information, Data Collection, Genetic Testing

Follow the Breadcrumbs: Where Does Consumer Data Go as 23andMe Goes Bankrupt?

McCarter & English, LLP on 4/14/2025

23andMe, a pioneer in the DNA testing kit industry, announced that it has filed for Chapter 11 bankruptcy protection and recently asked to select an independent customer data representative regarding any sale of user data....more

23andMe Hack: The Legal Fallout From the Breach and What it Means in PA

Houston Harbaugh, P.C. on 12/29/2023

In October of 2023, a hacker claimed online that they had 23andMe users’ profile information. We know this as a result of 23andMe’s required statement to the U.S. Securities and Exchange Commission (SEC) on December 1, 2023. ...more

Texas Joins States Limiting Use and Disclosure of Genetic Data

Sheppard Mullin Richter & Hampton LLP on 8/1/2023

On June 17, 2023, Texas enacted legislation (the “Legislation”) limiting use of genetic data by certain genetic data testing companies, joining a number of other states in tackling the ever-increasing privacy concerns...more

Privacy and Security of Genetic Information: The FTC Is Putting Privacy and Security Promises of DNA Companies to the Test

Foley Hoag LLP - Security, Privacy and the... on 6/21/2023

In the FTC’s first case focused on the privacy and security of genetic information, the FTC alleges that San Francisco-based Vitagene, Inc. – now known as 1Health.io – failed to live up to its promises and unfairly changed...more

Washington State’s My Health, My Data Act Sent to Governor

Jackson Lewis P.C. on 4/26/2023

Since the privacy and security regulations were issued under the federal Health Insurance Portability and Accountability Act (HIPAA), critics pointed to the limitations on the reach of those rules. A critical limitation...more

Three More California Privacy Bills Become Law: CPPA Rulemaking Responsibility, Genetic Data Breaches, and New Genetic Information...

Dorsey & Whitney LLP on 10/14/2021

Californians voted to enact the California Privacy Rights Act (“CPRA”) almost one year ago. Last week, Governor Gavin Newsom signed three new privacy bills into law....more