News & Analysis as of

Data Collection Genetic Testing Consumer Privacy Rights

McCarter & English, LLP

Follow the Breadcrumbs: Where Does Consumer Data Go as 23andMe Goes Bankrupt?

23andMe, a pioneer in the DNA testing kit industry, announced that it has filed for Chapter 11 bankruptcy protection and recently asked to select an independent customer data representative regarding any sale of user data....more

Jackson Walker

Immediate Steps to Safeguard Your Genetic Data Amid 23andMe Bankruptcy Concerns

Jackson Walker on

Since its 2006 founding, 23andMe’s (the “Company”) service of collecting, analyzing, and reporting customers’ genetic information has raised privacy concerns among many. Worsening those concerns, the Company filed for...more

Jackson Lewis P.C.

Nebraska Passes Genetic Information Privacy Act

Jackson Lewis P.C. on

On February 13, 2024, Nebraska’s Governor signed Legislative Bill 308, which enacts additional consumer protections for consumers in the state. It is similar to another genetic information law passed by Montana last year. ...more

Cozen O'Connor

State AG Pulse | CT AG Reacts to Genetic Data Breach

Cozen O'Connor on

A data breach that exposed sensitive data collected in genetic testing that could potentially be used to target vulnerable populations has attracted the attention of Connecticut AG William Tong. In Episode 9, Chris Allen and...more

Foley Hoag LLP - Security, Privacy and the...

Privacy and Security of Genetic Information: The FTC Is Putting Privacy and Security Promises of DNA Companies to the Test

In the FTC’s first case focused on the privacy and security of genetic information, the FTC alleges that San Francisco-based Vitagene, Inc. – now known as 1Health.io – failed to live up to its promises and unfairly changed...more

Jackson Lewis P.C.

Washington State’s My Health, My Data Act Sent to Governor

Jackson Lewis P.C. on

Since the privacy and security regulations were issued under the federal Health Insurance Portability and Accountability Act (HIPAA), critics pointed to the limitations on the reach of those rules. A critical limitation...more

Wyrick Robbins Yates & Ponton LLP

California’s New Genetic Testing Law Applies to 23andMe – AND Me (or my Company)?

Last month, California Governor Gavin Newsom signed Senate Bill 41, the Genetic Information Privacy Act (“GIPA”), a law that regulates “direct-to-consumer genetic testing companies” that handle the “genetic data” of...more

Robinson+Cole Data Privacy + Security Insider

Changing the Conversation About Sharing and Using Health Information

Some app developers know more about our health than our doctors do. Take, for instance, FitBit, which is attached to our wrist and measuring in real time our temperature, our heart rate, our steps and whether we have had...more

Robinson & Cole LLP

Data Privacy + Cybersecurity Insider - November 2019 #2

Robinson & Cole LLP on

Security researchers Intezer and IBM X-Force have identified a new ransomware that is seriously vicious. It’s PureLocker—named because it is programmed in PureBasic language, which is apparently unusual. ...more

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