News & Analysis as of

Genetic Testing Data Privacy Data Collection

McCarter & English, LLP

Follow the Breadcrumbs: Where Does Consumer Data Go as 23andMe Goes Bankrupt?

23andMe, a pioneer in the DNA testing kit industry, announced that it has filed for Chapter 11 bankruptcy protection and recently asked to select an independent customer data representative regarding any sale of user data....more

Jackson Walker

Immediate Steps to Safeguard Your Genetic Data Amid 23andMe Bankruptcy Concerns

Jackson Walker on

Since its 2006 founding, 23andMe’s (the “Company”) service of collecting, analyzing, and reporting customers’ genetic information has raised privacy concerns among many. Worsening those concerns, the Company filed for...more

Pillsbury - Internet & Social Media Law Blog

Navigating the Intersection of DNA Data and Privacy: Insights from the FTC

On January 5, 2024, the Federal Trade Commission (FTC) published an article discussing privacy issues related to the DNA information that many consumers provide to genetic testing companies. This post outlines key takeaways...more

McCarter & English, LLP

Are You Ready? How CCPA-Regulated Businesses Can Plan for Compliance with California’s Forthcoming Cybersecurity Regulations

The California Privacy Protection Agency (CPPA) released initial draft regulations for cybersecurity audits (which have since been amended) and risk assessments late this summer. The agency’s board of directors addressed the...more

Cozen O'Connor

State AG Pulse | CT AG Reacts to Genetic Data Breach

Cozen O'Connor on

A data breach that exposed sensitive data collected in genetic testing that could potentially be used to target vulnerable populations has attracted the attention of Connecticut AG William Tong. In Episode 9, Chris Allen and...more

Jackson Lewis P.C.

You Have Heard Of The BIPA, But What About The GIPA?

Jackson Lewis P.C. on

Enacted in 2008, the Illinois Biometric Information Privacy Act, 740 ILCS 14 et seq. (the “BIPA”), went largely unnoticed until a few years ago when a handful of cases sparked a flood of class action litigation over the...more

Sheppard Mullin Richter & Hampton LLP

California Governor Pulls the Plug on Genetic Information Privacy Act

Governor Gavin Newsom of California vetoed a bill that would have created new limitations on data sharing for direct-to-consumer genetic testing companies. The Genetic Information Privacy Act (GIPA) asked testing companies...more

Robinson & Cole LLP

Data Privacy + Cybersecurity Insider - October 2019

Robinson & Cole LLP on

Consistent with our experience, security firm McAfee has confirmed in a report that ransomware attacks have doubled in 2019. Medical providers have been hit hard this year, and one provider, Wood Ranch Medical, located in...more

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