News & Analysis as of

Data Collection Genetic Testing

Saul Ewing LLP

The Genetic Information Privacy Act: Recent Surge in Class Action Lawsuits Against Illinois Employers

Saul Ewing LLP on

Over the last decade, Illinois employers have been faced with a rash of class action lawsuits under the Biometric Information Privacy Act (BIPA), causing many employers to pay hefty sums and alter their biometric timekeeping...more

Jackson Lewis P.C.

Nebraska Passes Genetic Information Privacy Act

Jackson Lewis P.C. on

On February 13, 2024, Nebraska’s Governor signed Legislative Bill 308, which enacts additional consumer protections for consumers in the state. It is similar to another genetic information law passed by Montana last year. ...more

Pillsbury - Internet & Social Media Law Blog

Navigating the Intersection of DNA Data and Privacy: Insights from the FTC

On January 5, 2024, the Federal Trade Commission (FTC) published an article discussing privacy issues related to the DNA information that many consumers provide to genetic testing companies. This post outlines key takeaways...more

Houston Harbaugh, P.C.

23andMe Hack: The Legal Fallout From the Breach and What it Means in PA

Houston Harbaugh, P.C. on

In October of 2023, a hacker claimed online that they had 23andMe users’ profile information. We know this as a result of 23andMe’s required statement to the U.S. Securities and Exchange Commission (SEC) on December 1, 2023. ...more

McCarter & English, LLP

Are You Ready? How CCPA-Regulated Businesses Can Plan for Compliance with California’s Forthcoming Cybersecurity Regulations

The California Privacy Protection Agency (CPPA) released initial draft regulations for cybersecurity audits (which have since been amended) and risk assessments late this summer. The agency’s board of directors addressed the...more

Cozen O'Connor

State AG Pulse | CT AG Reacts to Genetic Data Breach

Cozen O'Connor on

A data breach that exposed sensitive data collected in genetic testing that could potentially be used to target vulnerable populations has attracted the attention of Connecticut AG William Tong. In Episode 9, Chris Allen and...more

Sheppard Mullin Richter & Hampton LLP

Texas Joins States Limiting Use and Disclosure of Genetic Data

On June 17, 2023, Texas enacted legislation (the “Legislation”) limiting use of genetic data by certain genetic data testing companies, joining a number of other states in tackling the ever-increasing privacy concerns...more

Foley Hoag LLP - Security, Privacy and the...

Privacy and Security of Genetic Information: The FTC Is Putting Privacy and Security Promises of DNA Companies to the Test

In the FTC’s first case focused on the privacy and security of genetic information, the FTC alleges that San Francisco-based Vitagene, Inc. – now known as 1Health.io – failed to live up to its promises and unfairly changed...more

Jackson Lewis P.C.

Washington State’s My Health, My Data Act Sent to Governor

Jackson Lewis P.C. on

Since the privacy and security regulations were issued under the federal Health Insurance Portability and Accountability Act (HIPAA), critics pointed to the limitations on the reach of those rules. A critical limitation...more

Hogan Lovells

California and Florida contribute to web of state genetic privacy protections

Hogan Lovells on

States continue to enact laws targeting the protection of genetic data with two important developments in California and Florida. California’s Genetic Information Privacy Act (“GIPA”), which came into effect on January 1,...more

Wyrick Robbins Yates & Ponton LLP

California’s New Genetic Testing Law Applies to 23andMe – AND Me (or my Company)?

Last month, California Governor Gavin Newsom signed Senate Bill 41, the Genetic Information Privacy Act (“GIPA”), a law that regulates “direct-to-consumer genetic testing companies” that handle the “genetic data” of...more

Womble Bond Dickinson

California and Florida Introduce Two More Genetic Privacy Laws Into the Mix

Womble Bond Dickinson on

Florida and California join a growing minority of states enacting laws protecting a person’s genetic information (Nevada and Alaska also have laws). Florida’s new genetic privacy law, known as Protecting DNA Privacy Act, went...more

Dorsey & Whitney LLP

Three More California Privacy Bills Become Law: CPPA Rulemaking Responsibility, Genetic Data Breaches, and New Genetic Information...

Dorsey & Whitney LLP on

Californians voted to enact the California Privacy Rights Act (“CPRA”) almost one year ago. Last week, Governor Gavin Newsom signed three new privacy bills into law....more

Jackson Lewis P.C.

You Have Heard Of The BIPA, But What About The GIPA?

Jackson Lewis P.C. on

Enacted in 2008, the Illinois Biometric Information Privacy Act, 740 ILCS 14 et seq. (the “BIPA”), went largely unnoticed until a few years ago when a handful of cases sparked a flood of class action litigation over the...more

Sheppard Mullin Richter & Hampton LLP

California Governor Pulls the Plug on Genetic Information Privacy Act

Governor Gavin Newsom of California vetoed a bill that would have created new limitations on data sharing for direct-to-consumer genetic testing companies. The Genetic Information Privacy Act (GIPA) asked testing companies...more

Robinson+Cole Data Privacy + Security Insider

Changing the Conversation About Sharing and Using Health Information

Some app developers know more about our health than our doctors do. Take, for instance, FitBit, which is attached to our wrist and measuring in real time our temperature, our heart rate, our steps and whether we have had...more

Robinson & Cole LLP

Data Privacy + Cybersecurity Insider - November 2019 #2

Robinson & Cole LLP on

Security researchers Intezer and IBM X-Force have identified a new ransomware that is seriously vicious. It’s PureLocker—named because it is programmed in PureBasic language, which is apparently unusual. ...more

Robinson & Cole LLP

Data Privacy + Cybersecurity Insider - October 2019

Robinson & Cole LLP on

Consistent with our experience, security firm McAfee has confirmed in a report that ransomware attacks have doubled in 2019. Medical providers have been hit hard this year, and one provider, Wood Ranch Medical, located in...more

Burns & Levinson LLP

The Importance of Context with Genetic Privacy

Burns & Levinson LLP on

As consumers, when we think of privacy, one of the first adjectives that springs to mind should be “inconsistent.” Consumers claim to want their personal information used only for the purposes they originally provided it, and...more

Cooley LLP

Blog: 23andMe Advances Its Goal of Creating Commercialized Database from Consumer Genetic Testing

Cooley LLP on

On January 12, 23andMe announced an agreement with Pfizer to provide the drug company with access to anonymous, aggregated information from consumers who bought 23andMe’s test over the past seven years to learn about their...more

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